Ingrid chats to CFNZ Chief Executive, Lisa Burns. They discuss what CFNZ does for CFers and their families throughout their lives and what the organisation's plans are for the future to make sure no one is left behind now that Trikafta is funde

Episode 17: Wrestler

Jul 10th, 2023 29m 42s

Ingrid chats to Dustin Raynor, better known as professional wrestler Dustin Bozworth. Dustin shares his story living with cystic fibrosis from childhood, to pro wrestling, to reality TV on ‘Stone Cold’ Steve Austin’s Broken Skull. It’s an inspi

Episode 16: Hospital

Jul 2nd, 2023 28m 14s

Ingrid shares their journey during a recent hospital admission and Orson gives his views on the whole adventure--- Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message

Episode 15: Bella Powell

Mar 27th, 2023 1h 10m

Ingrid sits down with Bella Powell, a young woman with CF who was the first in New Zealand to get Trikafta thanks to the late Sir Bob Elliott – who gave her this gift of life during his final months by funding the drug for her.Following on fro

Episode 14: Journalist, Patrick Gower

Feb 25th, 2023 54m 50s

Ingrid sits down with the well-respected and much-loved New Zealand journalist Patrick Gower to talk about the part he played in highlighting the need for funding of Trikafta for New Zealanders living with Cystic Fibrosis.This is a highly emot

Episode 13: Back to School

Jan 23rd, 2023 44m 21s

Ingrid chats with Helen Ulyatt, mother to an active 9-year-old CFer called Sophia. They chat about how she prepped for starting school and all the fears and worries surrounding this milestone, as well as managing trips to camp and hopes for the

Episode 12: Our diagnosis story

Oct 19th, 2022 34m 55s

We discuss the journey to diagnosis for our son Orson at six months old. From pregnancy and birth, tests, diagnosis and processing the news.It's emotionally a highly charged episode but we end up laughing quite a bit, which we're pleased to be

Episode 11: Never Better

Sep 6th, 2022 40m 57s

In this episode, Ian and I review the brilliant film Never Better and chat with its writer-director Julianne Fox.Julianne, who has CF herself, filmed Never Better in late 2020 and received great reviews when it played at film festivals. W#e ch

Episode 10: CF Toddler

Jul 31st, 2022 45m 8s

In this episode, Ian and I get to grips with life with a CF toddler. It's a general update on how CF affects our everyday life, plus a few tips on navigating a few milestones as your little CFer grows up. As always, we end up blowing off steam

Episode 9: Transplant

May 17th, 2022 42m 3s

Most of the New Zealand CF community know Lizzie McKay, a 30-year-old person with CF who works for CFNZ as a Communications Coordinator. Her friendly and bubbly nature makes her easy to like but her story is not an easy one to hear as a mother

Episode 8: Kalydeco

Apr 19th, 2022 49m

Chris Macleod is a Candian with CF who was one of Canada's first patients on Kalydeco ten years ago. He’s now 52 and has advocated for CF for many years. He’s also written a book called Beating The Odds: 11 Lessons to Overcome a Health Crisis a

Episode 7: Trikafta

Mar 23rd, 2022 55m 12s

Welcome to Season 2 or What the CF! We're so happy to be back and ready to share lots of CF stories about treatment with you.If you're part of the CF community and not aware of Trikafta (or Kraftrio) then you've been living under a rock! This '

Episode 6: Book

Sep 1st, 2021 51m 22s

Ingrid chats to Eilís Moroney, the author of 'Our Baby Has 65 Roses' and mum of a little person with CF - two-year-old AibhÍn, about diagnosis and how writing a book was her coping mechanism.Listen to the podcast for your chance to win a copy

Episode 5: Dads

Apr 12th, 2021 42m 55s

Eddie, Henry and David are all parents of little CFers. Ian chats to these three dads about diagnosis, telling friends and family, and what NOT to say to a CF parent. Thanks again to our guests for sharing so candidly and we know it's going to

Episode 4: Genetics

Mar 29th, 2021 34m 2s

Trigger warning - this podcast discusses pregnancy termination following pre-natal testing.Ingrid chats with Genetic Counsellor Kelly Sullivan about all things genes when it comes to getting the Cystic Fibrosis initial diagnosis. Kelly explai

Episode 3: Mums

Mar 15th, 2021 41m 42s

Sophie, Kayla and Jessica are all mums of little CFers born during the pandemic. Ingrid chats to these mums about diagnosis, telling friends and family and what NOT to say to a CF parent.--- Send in a voice message: https://podcasters.spoti

Episode 2: CFNZ Fieldworkers

Mar 1st, 2021 26m 1s

Ingrid chats to Sue Lovelock, Southern Fieldworker for Cystic Fibrosis New Zealand. Sue has worked as a fieldworker for 14 years and knows all too well the pain and fear of diagnosis, the heartbreak of the disease and the positive and happy li

Episode 1: Diagnosis

Feb 15th, 2021 35m 8s

Trailer

TRAILER - Ep. 1 - Diagnosis

Feb 8th, 2021 1m 14s

Check out the trailer for the very first episode of What The CF! A Cystic Fibrosis Podcast - COMING SOON - episode 1, we chat about our journey to getting a diagnosis for our son - just prior to the first lockdown in March 2020.--- Send i