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651 episode results
I recently attended the World Orphan Drug Congress in Boston, MA. The audio for this episode is from my YouTube video that you can find here: Dying to Live
Meredith Patterson is a performing artist, author, and producer whose family was impacted by Huntington's Disease. To learn more about her, please visit her website: https://meredithpatterson.com/She also has a podcast called "Confessions of
Piere Rodriguez-Aliaga, PhD, is a young investigator whose current HD research is funded by the Hereditary Disease Foundation. He is using a new Nobel Prize-winning technology called Optical Tweezers to study one huntingtin molecule at a time,
Jennifer Petrillo Billet PhD is an Executive Director and Program Lead for investigational dalzanemdor, or SAGE-718, at Sage Therapeutics. She is responsible for driving the global development strategy, including delivery of the right evidence
Please visit www.hdyo.org for more information
Please visit the Factor-H website for more information.Please also tune in to the Factor-H YouTube Channel on Saturday 3/23/2024 at 12 pm EST for HD Gratitude Day events in Venezuela.
Samantha and I got to participate in a focus group together. Here our thoughts about research and more!!
HDYO Ambassadors Series: Ep 1. with Robyn
Happy 1st anniversary of the #HDUncut Series on #Help4HDLive! This show is exactly why I came up with the series in the first place. John Howard has Huntington's Disease. He's also a very talented poet. On this show, he shares some new poetry w
Happy Valentine's Day! Join Erika Boulavsky from HD Reach and Lauren Holder from Help 4 HD in their conversations with Dave and Susie Hodgson about their Layers of Love. Dave and Susie's unique story talks about caring for both of their spouses
To follow Tanita Allen, please visit her website: https://tanitaallen.com/Here is the link to purchase a copy of Tanita Allen's book: We Exist
Please visit the Hereditary Disease Foundation website to find out more information.
If you'd like to follow Charlotte on social media, please visit her website: https://linktr.ee/thehdhunInstagram handle - @thehdhunTikTok - Click Here
HD Uncut, Ep. 11, with Dina De Sousa
Jamie L. Hamilton, PhD, is the Director of Clinical Outcome Assessments at CHDI. She led the HD Charge study, which focused on the indirect costs associated with being affected by Huntington's Disease.
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