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What is HD advocacy? How can people get involved, and how do people who don’t have HD in their families, but still want to help, fit in? On this episode of the HOPES podcast, we speak to Max Moon, who is the volunteer director of advocacy at th
Dealing with HD means having to jump through a lot of legal hoops to get the support that you need. Today on the HOPES Podcast, we feature special guest Allison Bartlett, Esq., a licensed disability attorney who currently serves as the manager
In this episode of the HOPES podcast, we meet Dawn, who took care of her partner of 35 years, Tom, throughout his life with HD. For caregivers, looking after a loved one with HD means facing the unfortunate realities of the disease, and looking
Lauren shares her feelings about the holidays and her recent birthday.
Dr. Katja Obieglo joins Lauren to talk about the research Vico Therapeutics is doing. To learn more, please visit their website here.
Dr. Hett's research uses non-invasive MRI technology to investigate HD-related changes in the circulation of the fluid that bathes the nervous system, known as cerebrospinal fluid (CSF). By measuring the flow of CSF in people, Dr. Hett will att
If you'd like to learn more about HD-CAB, including how to become a member, please visit the website here.You can also contact Jenna Heilman at [email protected].
Rita Gandhy is a movement disorders neurologist and comes with over 4 years of experience at Roche/Genentech. Prior to her current work in USMA, Rita led the Study Review Team for a planned tominersen study in late onset Huntington's Disease, b
Chris Brown joins me to talk about the age of onset in HD
If you'd like to join Kayla's Facebook group, please click here.
Lauren's Experience with Surveyor
"Sex, Drugs, Rock 'n Roll...and HD" with Erika B. and Dr. Katherine McDonell
Dr. Jack Lam and Erika B. join me to discuss CBD, cannabis and HD
Kelly Clark is a caregiver for her husband. They are currently using photobiomodulation therapy on her husband to help with his HD.For more information about the research being done, please visit Vielight at vielight.comPlease add Kelly as
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