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Connecting ALS

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Connecting ALS is a monthly podcast from the MN/ND/SD Chapter of the ALS Association. Through conversations, interviews, and audio documentaries we aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community. For transcriptions of each episode follow us on Tumblr.

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"National Family Caregivers Month and A Moment With John..."
In November we are celebrating National Family Caregivers Month, which means recognizing all the incredible individuals who commit to caring for a loved one. That is the theme for the month and we’ve got some compelling caregiving content to share with you. First on the docket is a conversation with Danielle Carr and Shaun Olson, both of whom have considerable experience as family caregivers. They also happen to be close friends and it was interesting to hear them share some of the lessons they learned over the years. In the second segment we took advantage of the expertise that exists within our team at The ALS Association in an interview with Care Services Coordinator Jennifer Myhre. Jennifer has been assisting caregivers in our region for many years and helped paint a clearer picture of both the challenges they often face and the resources that are available to help.  Jennifer also talks about respite care as a resource, and that's something we did a deeper dive on during our time with Jennifer on episode 2. Find it in your podcast feed or on our site at: https://www.connectingals.org/episodes/home-health-voice-banking-and-clinical-careTo wrap today’s show we're also introducing a new segment meant to provide a glimpse into the lives of individuals and families living with ALS. We’re calling it ‘A Moment With…’ and this month our producer, Garrett, spent some time with the Seidl family from the Twin Cities of Minnesota. Find a transcript of this episode and examples of John's work on Tumblr.This episode was produced by Garrett Tiedemann and is brought to you by the Connectivity Center at the ALS Association MN/ND/SD Chapter.
Bonus Episode: Panel Discussion on Caregiving
On Wednesday we were fortunate to have Gary and Kathy in the Connectivity Center. They were here to share their experiences as caregivers with our support group as part of National Caregivers Month. Each had a lot to say and we felt like this was something worth sharing for those who could not be in attendance. For further resources visit: http://webmn.alsa.org/site/PageNavigator/MN_8b_caregivers.htmlIn the conversation they bring up the value of Respite, our Durable Medical Equipment Loan Pool, and the Hrbek-Sing program. For more information on any of these programs please visit the following links:http://webmn.alsa.org/site/PageServer?pagename=MN_8b_PS_Respite_Programhttp://webmn.alsa.org/site/PageServer?pagename=MN_8_PS_Equipment_Processhttp://webmn.alsa.org/site/PageNavigator/MN_8d_PS_Communication_Needs.htmlIf you would like information about attending a support group please visit: http://webmn.alsa.org/site/PageNavigator/MN_8_SupportGroups.htmlFind a transcript of this episode soon on Tumblr.This episode was produced by Garrett Tiedemann and is brought to you by the Connectivity Center at the ALS Association MN/ND/SD Chapter.
"ALSUntangled and a Listening Tour..."
This month we were very fortunate to secure some time with arguably the most influential ALS specialist in the world, Dr. Richard Bedlack of Duke University. As always, Dr. Bedlack has a number of irons in the fire and we chatted about ALSUntangled, his ongoing study of ALS reversals, and where he sees research heading in the near future. For our second segment, I sat down with Jennifer Hjelle, the Executive Director at our Chapter of The ALS Association to discuss some of the recent feedback she has received from individuals and families impacted by ALS while on a three state listening tour.As discussed in the segment, Jen will be continuing her listening tour in St. Cloud at the Stearns History Museum (235 33rd Ave), on Thursday, October 17 (10/17), at 4:00p and in Sioux Falls at the Ronning Library (3100 E 49th St), on Wednesday, October 30 (10/30), at 4:00p. Visit our Facebook page for more information. To RSVP, email terrylynn@alsmn.org or call 612.672.0484. Follow ALSUntangled on Twitter and be sure to check out their podcast thanks to CReATe Connect. Find a transcript of this episode soon on Tumblr.This episode was produced by Garrett Tiedemann and is brought to you by the Connectivity Center at the ALS Association MN/ND/SD Chapter.

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Podcast Details
Started
Apr 24th, 2019
Latest Episode
Nov 14th, 2019
Release Period
Monthly
No. of Episodes
10
Avg. Episode Length
About 1 hour
Explicit
No
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