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Episodes of HAE Speaks
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This month’s HAE Speaks Podcast episode features John, an individual with HAE, as he shares his inspiring journey of raising awareness cross-country. Join us as John recounts his innovative tactics and heartfelt efforts while traveling through
In this episode, we chat with Alecia, who shares her experiences hosting a memorial HAE walk in memory of her brother, Joseph Fairbanks Jr., who passed away due to HAE. Over 100 participants attended Alecia’s event in her hometown of Red Lake N
Senior Nurse Advocate with over 20 years of experience working with HAE patients will discuss tips and recommendations for successfully navigating the busy holiday season with HAE.For more information about Hereditary Angioedema please visit
2023 was a busy year for the HAE community. Listen in as community members share theirhighlights of 2023. For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst Pharmaceutical
Kate has lived with HAE all of her life but she does not let HAE control her life. Listen in as Kate shares her amazing feats and living her “dash” life.For more information about Hereditary Angioedema please visit HAEA.orgThank you to o
Dusty struggled for 25 years to find an HAE diagnosis. She was fortunate to find Mark who has been a great caregiver for her. The journey has been full of highs and lows. Listen in as they share their stories from her HAE journey.For more i
HAE Speaks Podcast - Episode 41: Back toSchool tips with MandyAmandaGrant, HAE Health Advocate shares advice to help you be prepared for back toschool. She also shares many resourcesavailable through the HAEA to help guide conversatio
HAE Speaks Podcast - Episode 40: In this episode of HAE Speaks podcast Missy and Karissa discuss what it is like going away to college while living with HAE. Karissa shares some important lessons learned as well as tips and tricks to help
Episode 39: Adina Mauk:HAEA Health Advocate, shares the importance of mindfulness along with tips and tricks. Looking for ideas and methods for self-care?Adina has just the information you are looking for. In this episode ofthe HAE Speaks
Episode 38: In this episode of HAE Speaks podcast learn more about hosting an HAE DIY event. Missy speaks with Mike about DIY events and many of the resources available from the HAEA to assist you with your event. Also, listen in as Missy sits
Episode 37: In this episode of the HAE Speaks podcast Missy talks with Bobbi andMike about their journey of living with HAE and also the transition of becomingcaregivers for their children diagnosed with HAE. For more information about Here
Episode 36: Dr. Riedl discusses the HAEA shared decision making tool. A free tool available at HAEA.org to help individuals living with HAE prepare for their physician appointments. Dr. Riedl:Allergist/ImmunologistClinical Director of UC San
Episode 35: Lora shares her HAE journey as well as how she spreads HAE awareness nationwide.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsKalvista PharmaceuticalsTak
In this episode, Kelsie talks about her HAE journey and navigating college with HAE. For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsKalvista PharmaceuticalsTakeda
In this episode, BioMarin’s Clinical Science Lead, Jack Brownrigg, and HAE physician, Dr. Timothy Craig, discuss AAV Gene Therapy and BioMarin’s investigational clinical trial for HAE.For more information about Hereditary Angioedema please vi
Kayla, an individual with HAE, shares her perspective on being recently diagnosed with HAE, advocating for herself, and her journey to a diagnosis.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsor
In this episode of the HAE Speaks podcast, the HAEA staff talks about their accomplishments in 2022. Listen now to hear what resources are available!For more information about Hereditary Angioedema please visit HAEA.orgThank you to our spons
In this episode of the HAE Speaks podcast, Jess talks about the importance of advocacy and how you can get involved.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBio
In this episode of the HAE Speaks podcast we hear from HAEA staff member Adina. Adina shares her HAE journey from diagnosis to today.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst P
In this episode Bobbi shares her journey with HAE as a person diagnosed with HAE, turning into also a caregiver, and how her and her girls are living a great life with HAE.For more information about Hereditary Angioedema please visit HAEA.org
A message from our Sponsor: BioCryst Pharmaceuticals:In this episode of the HAE Speaks podcast, we listen to Red share his experience with HAE and preventing attacks with ORLADEYO® (berotralstat), the once daily oral treatment.For more inform
In this episode of the HAE Speaks podcast, Troyce provides tips about going back to school while having HAE. Troyce provides insight at each level of school, beginning with kindergarten and all the way through college, attending school while at
In this episode of the HAE Speaks podcast, we listen to Abby share her experience and excitement about being a part of the HAEA Brady club.For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCry
The 2022 HAE IN-MOTION® - Step it up for HAE virtual challenge registration is open. In this episode, hear tips, tricks, and advice from a past participant. Register now at HAEA.org. For more information about Hereditary Angioedema please vis
Lisa and Mike tell us about the 2022 HAE day :-) campaign. Register now at HAEA.org. For more information about Hereditary Angioedema please visit HAEA.orgThank you to our sponsors:BioCryst PharmaceuticalsBioMarinTakeda
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