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Ashley Clarke's bio: I am 28 years old and Huntington's first entered my life when i was around 14 years old, with the positive diagnosis of my dad. From the age of 17, i cared for my dad alongside my brother, attended school/ university, worke
We talk with Dr. Natalia Rocha about research she's been working on, specifically "Sex Differences in Huntington's Disease: Evaluating the Enroll‐HD Database"Dr. Rocha joined The University of Texas Health Science Center at Houston as a Postd
For more information about the Pathway Program, please visit: https://www.hdreach.org/
Ben joined NHPCO in October 2020, bringing 30 years of leadership experience in educational, healthcare, and social service settings. Prior to joining the NHPCO senior leadership team, Ben was with Hospice of the Chesapeake where he served as P
If you are interested in the ChANGE HD study, you can find out more at our website: www.changehd.org or come see us on Facebook: @ChangeHDresearchYou can also call our toll-free number: 1-866-514-0858 or send us an e-mail at: change-hd@uiowa.
Tune in to hear Katie Jackson, Katrina Hamel, and Lauren Holder talk about the news that came out of Genentech/Roche.
For more information about Adira Foundation, please visit https://adirafoundation.org/about/letter-from-ceo/
TODAY (3/10) is the LAST DAY to register for HIPE. You can register at this link: https://www.help4hd.org/events-1/help-4-hd-hipe-virtual-myth-busters/formHDYO's virtual event for young adults is March 13th and 14th. You can register for this
Show Your Stripes for Rare Disease Day and all year long!Visit https://www.rarediseaseday.org for more information on Rare Disease DayGreat resource for rare diseases: https://rarediseases.info.nih.gov/
Tracing your HD Ancestry
Carlos Briceño has started a new podcast that focuses on the caregiver journey and having a healthy emotional outlet¨ through creativity. This includes original poems, music and more.You can learn more about the podcast and submit content at:
Let's talk about Kinect-HD trial with Dr. Erin Furr-Stimming and Dr. Dan Claasen
Dr. Tamara Maiuri works as a Research Associate in Dr. Ray Truant’s lab at McMaster University in Hamilton, Canada, where her research is focused on the role of the huntingtin protein in DNA repair. Tam is also an active member of the HD commun
Tune in to hear about Nancy Sweets horrible situation with a rehab facility that was supposed to be caring for her son living with HD and tested positive for COVID.
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